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Cancer Surgery- One Year Later

One year ago today, I underwent a thyroidectomy (complete removal of the thyroid) surgery, and a neck dissection to remove almost all of the lymph nodes in my neck, because I had cancer.  (You can read more about the surgery here, After Thyroid Cancer Surgery. I have posted some other pictures at the end of this post, I thought may be helpful to others who are facing a similar surgery.)

A lot has happened during the past year.  At the time it was my biggest challenge.  Cancer is a big deal.  Even thyroid cancer, which most every doctor will say is the “best” cancer to have is a major, life changing event.  I haven’t talked to one thyroid cancer survivor yet, who hasn’t experienced some type of problem, or issue with their recovery.  For me, it was a mistake the endocrinologist’s office made, and I ended up without any thyroid replacement hormone (usually synthroid) for three months.  I developed severe hypothyroidism.  There were some days, I could not physically get out of bed, and I felt like I was 100 years old.  I had extreme pain from the surgery still, and I was confused, exhausted, and I could barely function. A year later, the left side of my neck is numb, and I still have shoulder pain. 

I receive e-mail’s weekly from other thyroid cancer survivors who are on synthroid, but the dosage is wrong, and they are experiencing hypothyroidism.  It paralyzes your life, and for me, the surgery ended up being the “easy” part.  When any organ is removed from your body, and a drug has take over the function, there are going to be complications.  Fortunately for me, when I finally was able to take synthroid, after radioactive iodine (RAI), my dosage was correct the first time.  I felt better hours after I took it.  One year later, I still have not had to have an adjustment in the dosage.  My doctors tell me this is extremely rare.  However, I still feel like I lost three months of my life.  Time with my boys, I will never get back. 

Four months after my surgery, I started running.  I was going to run in one 5K race- the Race for the Cure for breast cancer.  I enjoyed it, and it gave me a new appreciation for my health and fitness.  I think it is very important to become active as soon as you can.  It helped me get out of a “cancer patient” mode, and on to the next stage, which is a new life- cancer free.  Running made me strong again, physically and mentally.  I could not have known at the time, how strong I was going to have to be, in the very near future.

At the time I was diagnosed with cancer, I had been separated from my husband for three months, and in the process of divorce.  It was not an easy divorce to say the least.  There was a small “break” if you can call it that, while I was recovering, but after the RAI treatment, the divorce continued, adding an enormous amount of stress to my life.  I had a friend tell me after cancer, getting divorced would seem like a vacation, but this sadly, was not the case.  There wasn’t anything I could do, except plow through it until it was over.  The divorce was finalized last month, at the end of May.  Divorce was far harder emotionally than cancer had been.  

But the hardest thing- harder than cancer or divorce- was the unexpected death of my mother in February of this year.  It is the most devastating thing to lose a parent.  My mom came out last July (she lived out of state), a few weeks after my cancer surgery, to help me recover.  At this point,  I had hypothyroidism, and she took care of me, and Ryan and Cole during my parenting time.  It was one of the last times we had together.  I saw her for a few days at Christmas, and then I watched her die.   

Her friends all came to visit her, and they told me how utterly worried and scared my mom had been over my cancer.  My mom had never let on to me she felt that way.  She had always been so strong- always telling me I was going to beat cancer, and I was a very healthy person.  Her friends also told me how distressed she had been over my divorce-over the tactics that were being used, and the high stress I was under.  Again, she never let me know she was feeling like this.  She gave me strength and encouragement to keep going.  She told me all the stress the divorce was bringing to me was like cancer itself.  I could let it consume me, or I could fight, and beat the stress- knowing there would be a bright future when it was all over. 

I had seven days with my mom, while she died.  A day and a half later after I had returned home from her death, I had to jump right back in to divorce mode, and meet with a child family investigator (CFI) and a forensic psychologist for interviews and psychological testing.  These interviews and tests would result in parenting recommendations for the judge in the divorce case to consider.  This was in March, and cancer seemed like it happened a million years ago.

Now it is a year later from that day.  A year ago, I thought having cancer was one of the worst things that could happen to me.  Over the last year, I have learned-harshly-there are worst things than cancer. 

I remember thinking if I could get through this cancer, I could get through anything.  In a way I was right.  It turns out, cancer was the “easiest” of the three things I faced during the past year. 

I would not have gotten through any of this without my family and friends.  I hope I tell you enough how much I appreciate and love you all.  You are the ones who got me through this past year.  From the moment I checked into the hospital a year ago, to just the last few days- thank you for being there for me when I needed you.

For anyone who is reading this, who has just found out they have cancer, is going to have to have cancer surgery, or is recovering from thyroid cancer, there will be good days and bad days.  Don’t let the bad days devestate you.  Cancer changes a lot about your life, but you also have an opportunity to really see a lot of love and support around you.  It teaches you to let go of the small stuff, and to just enjoy the days you are given. 

Some of these days will be dark.  Some of these days you are going to have to fight with every ounce of strength you have just to get to the next hour.  Some of these days you will have to let other people help you, because you won’t be able to do it all.  Some of these days, you will have to let things go, and be okay with just being.  Some of these days you will question if it is even really worth it.  When you realize, without a doubt, yes it is- then the clouds start to fade away.  Instead of feeling weak, you feel strong.  Instead of feeling sorry for yourself, you feel grateful you are alive.  Instead of feeling guilty, you feel content.  Then you will know in your soul you have beaten cancer, and it is far from the end- it is your new beginning.

 

One day after surgery, recovering in intensive care, 6-13-2009

My scar, seven days after surgery, 6-19-2009

My scar, one year after surgery, 6-12-2010

6-12-2010

17 replies on “Cancer Surgery- One Year Later”

wow – the scar is almost invisible.

I’m just starting my battle with breast cancer – chemo starts on monday. I’m hopeful, but nervous. I know it’s going to be a tough battle, and it’s not a great prognosis. But I’m hitting it with everything I’ve got.

Wow – that scar looked “great” last time I saw you; now it’s BARELY visible! That’s awesome!!

I’m seriously hoping you got about a decade’s worth of bullshit all done in one year. The universe is just being efficient, that’s all. 😉 You’ve handled everything with such grace and dignity, through and through. So proud to know you!!

thank you….so encouraging… Your year has been overwhelming. I don’t know you but feel like I do. I like LaALa Girls post above!
Thanks for all your honesty. I’m just at the beginning…just had RAI, and only 4 days into meds. It’s still kinda frustrating & dark, but I can see light.

The most annoying part for me have been well-meaning people (including doctors & nurses who should know better)…saying that it’s “the cancer to have if you have to have one”. all cancer is awful.

Also people giving advice without being asked and saying “it’ll be Ok” and trying to fix it. I just want to bitch some days, OK? People need to be more honest & open like you have been. Thanks so much.

i too am in RAI isolation right now from a neck dysection from thyroid cancer. Your scar looks great! Can you tell me what you put on it?? i was using vit e oil, now just a silicone based product.. but not sure if its good or not. your scar looks GREAT!

I was just diagnosed with Thyroid cancer last month. I have my surgery on November 30th. I am scared but hopeful all will go well. I hear so aften that it’s no big deal and if you have to have cancer this is the one you want. Well I don’t want it at all. You are a remarkable lady and your scar looks great. Please tell me what you used on your scar to make it look almost invisible.

Three years ago I was diagnosed with Hashimoto’s and Hypothyroidism. I’ve had 2 surgeries on my thyroid. The first to remove the right half of the thyroid and a tumor. Tests came back benign. 2 years later (Mar 2010) I had the left half of my thyroid removed. One of the three tumors found was cancerous. I did radiation in June. Didn’t work. Now it’s in the lymph nodes. My Neck Dissection is set for this Friday at MDAnderson. Looking forward to next year so thisw will all be a menory and hoping my scar turns out like yours. It looks great!

I am recovering from RAI after thyroid surgery. I am using Bio Oil purchased in the local drug store. It is great for scars.

I was just recently diagnosed with Thyroid Cancer, the doctor told me just like everyone else that it’s the best place to get Cancer…WOW!! Still scares me. I have surgery January 16,2012. I would like to hear from others on how they felt symptom wise before surgery, I have been feeling so weak and drained and just want this to be over with. Thank you so much for this blog I know now I am not the only one who feels like this. Happy New Year to all.

Three weeks ago I too underwent a thyroidectomy surgery, and a neck dissection to remove every thing on the right side of my neck. I tell every one I won the cancer lottery, if your going to get cancer its the one to get. But Almost three week after my surgery, I am concerned my right shoulder still hurts to the point of limiting my movement and the headache don’t see to lighting up. And I am starting to feel a weight around my neck, which is total numb. Do you have any suggestions? The doctor said this procedure only has a 2-3 week recovery period. I am glad I found your blog since I had not even thought about putting anything on the scar to help.

You are an inspiration! Thanks for posting your blog and your story. I haven’t really found anyone that I could talk to about this. I had a 14 1/2 hour surgery on 11/17/12 to remove my Thyroid and 75 lymph nodes. My hospital stay was 9 days. My pain has been pretty intense and lots of phantom pain due to cut nerves. My cancer had spread quite a bit and I wish I would not have waited over a year to have a tumor in my neck biopsied. I will get the Radioactive Iodine treatment in a few weeks and hopefully this will put me on the path to recovery. My neck is still very swollen. I use to have a chin, but now I look like Humpty Dumpty! How long did it take for the pain to go away and when did the swelling go down. I don’t want my wife or kids to know how much I’m suffering, so I hide it by going into the bathroom or clenching my fist as tight as I can behind my back. Its so bad right now I have to stop typing!

John,

The pain shouldn’t be so bad, Please see your doctor. I was on pain killers too, for about 3 weeks. My surgeon said for that type of surgery, 3-4 weeks on the heavy pain killers (Vicodin, etc.) is not uncommon. You don’t have to live with the pain, and the swelling. Please see your doctor, if you are not feeling better.

You are truly an inspiration for me. I am in my late twenties and was recently diagnosed with thyroid cancer. Just got the news that it has spread to my lymph nodes as well. It is going to be neck dissection for me.
You have been through a lot and handled it very well. I pray to the good Lord that this is a new beginning for you and the boys. You look great and have a wonderful attitude, stay positive and keep radiating your positive energy. There are many who need it. Thank you for giving me hope.

I was diagnosed 1year ago 3rd stage papillary cancer, good days and bad but I’m still here, praying for those on this website

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