Thank you all for the e-mails and comments youyou have sent me. Many of my readers asked me to keep them updated, so here is what I found out today from my surgeon.
The surgery is the worst case scenario. The two lymph nodes that are of major concern, are right below my ears. This means the surgeon is going to have to make a U shaped incision that runs under my ear, to my neck to the other ear. He will then have to work his way up- he said lymph nodes are like a ladder- one layer had to be removed before he can get to the next layer. He said he is going to have to dissect my neck. He said there are 80 nodes in this area, and he is going to try to get them all out, as he works his way up to get the ones with the known cancer. Every one they can get out, reduces the chance of a reoccurrence. He said lymph nodes should be under 1 cm. The two that are of concern are measuring 2.7 cm., and 3.5 cm. He said they could do a biopsy to make sure they are cancerous, but he said in his best professional opinion, he has never seen a case where the nodes are enlarged like this, and it wasn’t cancer.
I would think more seriously about a biopsy, but my thyroglobulin in my blood should be at 0, and it is at 37. He said he was very surprised it was this high. He said that all but confirms the enlarged nodes are cancer, and it is now showing up in my blood work. Dr. said it is more than likely that cancer is in my other lymph nodes in my body. But until they grow large enough, they are hard to detect. Six weeks after the surgery, I will have the radioactive iodine therapy that will kill off any cancer cells in any other lymph nodes. This is an effective treatment- it is a one time thing, I don’t lose hair or get sick. It does not look like I will need chemotherapy.
Because there is so much tissue, nerves, fat, and other vital parts in the neck, they have to work very slowly and meticulously in order to preserve as much of these as possible. It is a possibility I will lose my voice-for good- he said about 4% of people do. The vocal cords are right behind the thyroid and there are lymph nodes there.
Dr. said this is a brutal surgery. They have to cut away so much tissue and nerves to get to the lymph nodes, it is complex, slow, and there are other risks involved.
One thing he told me I am going to have to sacrifice is nerve endings in my neck. After the surgery, I will be numb from my earlobes to my collarbone- permanently. He said there is no way around this. Because I will be numb, I won’t feel the pain in my neck, but he said because all those nerves and tissues are connected, I will feel the pain in my shoulders.
He said the pain in my shoulders will be excruciating. He said he could not stress this enough for me, so I can be prepared. I am going to be in rehab for my shoulders 48 hours after the surgery. The surgery is going to be at least 10 hours. I will be in the hospital for up to 7 days. The recovery time after this is about 2 weeks.
I asked Dr. if I was going to die, and he said no. I told him I have my two boys, and he said I will be around for a long time for them. Learning all this was very shocking, and I started crying. Dr. gave me a hug and told me he knows how hard this is. His wife had thyroid cancer 2 years ago and he operated on her. He said their family went through the same thing, but my chances for a full recovery are very good.
I feel confident with the doctor- he is the leading surgeon for these types of cases in Northern Colorado. He’s been in practice for 16 years. He is on top of the current research and alternatives, because of his wife having the same thing. I feel he understands the emotional aspect of this for me as well. I told him I trusted him with this- to do what he needs to do, to make sure I am around for my boys. I am thinking about obtaining a second opinion, just to make sure I am covering all my options (thanks Mel).
This is shaping up to be one of the hardest things I have faced. I feel I have the information and the facts now to face it head-on. If you believe in a higher spiritual force, like God 🙂 please pray for me. If not, please send me positive and healing thoughts. I will need them.
I thank all of you- my friends (even if I have never met you in real life- 🙂 ) and family for all the support and love you have shown me. I feel it, and it is what will get me through this.