I am being tested this week for any traces of thyroid cancer that may be remaining, or for a recurrence. I’ve had to put this test off for 6 months, so I’m very glad I’m doing it now, but with any type of cancer test- it’s a little scary too.
I wasn’t sure what to expect or really what the process was while I was scheduling it. The nurse at my endocrinologist kept telling me it was a week long process. I am finding out as I go along. I wanted to share the process for others who will be facing the same test.
On the first two days, Monday and today, I had an injection of the drug, Thyrogen at 8 in the morning. Thyrogen is used to test the blood for a hormone called thyroglobulin (Tg), which can indicate cancer. Before Thyrogen, to test for Tg levels, a patient would have to stop taking any thyroid medication such as Synthroid for six weeks, and become hypothyroid. I was hypothyroid for almost thirteen weeks after my surgery, and it was one of the most difficult times in my life. Needless to say, I’m very happy I was able to have Thyrogen.
The shots themselves weren’t bad. Just more inconvenient than anything. The nurse I was scheduled with on Monday was 3o minutes late, and I had a tight schedule that morning. I started thinking it was a bad sign, and worries crept in. I forced myself to think positive thoughts. The injections were given to me below the hip, pretty much in my gluteal muscles. I had Cole with me on Monday, and he thought it was very funny Mom got a shot there.
The rest of the day on Monday, I felt great. I felt like I normally do. With Daylight Savings having just started, it was light out when I got home from work with the boys, and I ran a fast one mile. A few hours after the shot on Tuesday, I started feeling sick. I was very nauseous, and I had a bad headache. I felt extremely tired too. The nausea came and went. I fortunately was off of work for the day so I was able to rest and take it easier.
On Wednesday I have to take a dose of radio active iodine in preparation for the full body scan on Thursday. The dose is very small and there are no restrictions on being around other people or children after I take the dose. The letter the nuclear medicine department sent me said the radiation dose I’ll be taking is less than what is in a standard x-ray. I am optimistic I won’t have any side effects. I have a 15 minute appointment with the doctor, take the pill at the nuclear medicine department, and then drive back to work.
On Thursday in the afternoon, I have a full body scan. This is where they will be able to see any “hot” spots, or thyroid cells in my body which can indicate cancer. The entire appointment is about 45 minutes, but I don’t like the scans. I have always felt claustrophobic in the machine, and I hate sitting there waiting for it. So this is the day I’m dreading the most in the process. My good friend, Amy, is pretty sure she will be able to come with me, and I’ll be very grateful for her presence.
On Friday morning, I have to have blood drawn, so they can do blood work. The nurse reminded me today how important this step is. She said she has patients all the time that do the entire week, but then don’t have their blood drawn, and she says it is a complete waste. They won’t have accurate results without the blood work.
After all of this, I have to wait until next week for the results. I know I will be thinking of all the “what if’s” during this time, but I am going to try really hard to think of all the positives- like the type of thyroid cancer I had, has about a 3% recurrence rate. I still feel better physically than I ever have in my life, have never had to have a Synthroid medication adjustment, and the last test I had the Tg level was undetectable. The odds are definitely in my favor that I am fine, and these tests will confirm that.
Please think good thoughts for me during the next week, as I do the same for myself. If anyone wants to add their experience with their thyroid recurrence tests, feel free to do so in the comments. I’d be interested in hearing how it went for others.