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ACS Blogger Advisory Council Cancer Health

Hope Lodge-New York City

When I was in New York, I was invited to tour the Hope Lodge facility, as a member of the American Cancer Society (ACS) Blogger Advisory Council I serve on.  

The ACS has more than 30 Hope Lodge locations in the United States and Puerto Rico.  Their purpose is to provide cancer patients and their caregivers a temporary free place to stay when having to travel to another city for cancer treatments. 

As I toured the Jerome L. Greene Hope Center in the heart of New York, I was deeply touched.  I had no idea the scope of services they provide for cancer patients.  There are lovely and homey rooms, which don’t feel like hotel or hospital rooms.  Each floor includes a kitchen, dining area, a quiet lounge, and laundry.  In addition, Hope Lodge helps cancer patients with the healing process.  There are support programs which include meditation, touch therapy, support groups, yoga, and nutritional seminars.  Patients also have access to ACS services such as Look Good…Feel Better, the Wig Program, and Man to Man. 

If a patient is staying at Hope Lodge- all of it is free.  They have 60 rooms at Hope Lodge and they are booked every night, months in advance.  To stay at Hope Lodge, a patient has to be referred by a hospital social worker, as they try to serve the patients with the greatest needs.  I was very impressed as the director told us even if a cancer patient isn’t staying at Hope Lodge, if they are in the city for cancer treatment, they can still come and use all the services free of charge. 

I took a lot of pictures of the facility, but there is a virtual tour you can take as well.  I think that captures the lodge much better than the pictures I took. However, as we walked by the common area, there was a party going on.  There was a woman playing the piano, patients and their caregivers listening, talking, and visiting.  There was so much food, much of it baked by volunteers.  There were beautiful cookies which volunteers baked.  These pictures aren’t on the on-line tour:

 

This really touched me because of the amount of time, care, and sense of community that exists here.  We toured the facility for an hour, but you could tell there was a lot of love, and dedication, not just by the staff, but by the volunteers, caregivers, and patients themselves.

While I was listening to all the information, and seeing this facility, I couldn’t help but feel a bit overwhelmed in the facility.  It is a wonderful place for any cancer patient.  I wish there was a Hope Lodge in Denver, because I would definitely benefited from their services, even if I had not needed lodging. 

The moment that touched me the most, was as the tour was finishing and I was having a few words with Karen Radwin, the Senior Managing Executive.  She had taken us on the tour and had answered all of our questions.  We were standing somewhat away from the group and I told her I had thyroid cancer last year.  I am sure she can’t count how many times she hears cancer stories, but she listened to mine as if it was the only one she had ever heard.  She asked me questions, no one else had ever thought to ask about my cancer and recovery process.  Even though our conversation was just a few minutes, it still is with me.  

I’ve thought a lot about how to write this post.  There are so many wonderful things Hope Lodge provides, it is hard to pinpoint just a few.  But as a cancer survivor myself, the element I felt the most, from the moment I walked in, and what was confirmed by the tour was care.  The staff really cares and does whatever it can to help cancer patients.  Our medical professionals are so busy, it isn’t always possible to get the feeling of care and love in a hospital. 

The fact these lodges exist to provide caring and healing services to cancer patients is priceless.  It is a major step in the recovery process from cancer, and I am so glad Hope Lodges are there for cancer patients and their families in the direst time of need. 

No asks to have cancer.  No one really plans to have cancer.  Not everyone knows what to say or do when a loved one has cancer.  If you live near a Hope Lodge, seek them out.  They can help, even if the patient isn’t staying there. 

In a world where a disease like cancer is ruled by medical diagnosis’s, invading procedures, surgeries, and drugs, to be able to have services on the flip side, care, love, understanding, and support, is invaluable.  It is the difference between surviving cancer, and healing from cancer.

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ACS Blogger Advisory Council Cancer Family & Friends Mothering Parenting

Home & Vacation

I am back from New York.  Wow!!  I can see why people either love or hate it.  I loved it!  It was such a different experience for me.  I’ve lived near Boulder, CO almost my entire life.  I’ve been to Los Angeles several times, but New York was by far the biggest city I’ve ever been in. 

People were nice and very helpful.  No one was rude or had an attitude.  I felt very safe walking around Times Square at night- there was only about 50,000 other people around, police all around, and almost every shop and restaurant was open.  There was only negative thing happen, and that was on the way to the airport on the way home.  The taxi I took smelled like gasoline, and I was on the verge of getting really sick by the time I got to the airport.  Other than that, everything went great. 

The tour of the New York Hope Lodge was amazing.  I am going to write a more detailed blog post about that, but I was so touched by what they do for cancer patients.  As I listened and saw what they did, I thought back to my own experience with cancer last year and thought it was great there are facilities like this that help the patients with the most need.  Especially in a place like New York, where it is so expensive to stay long-term.  I was impressed to learn there are 40 other Hope Lodges in the United States.  It was clear to see Hope Lodges are a great asset in helping cancer patients and their caregivers fight cancer. 

I hope to write more about New York soon (with pictures!), but I had a long day at work yesterday, and the boys and I are leaving tomorow for our vacation together.  We are going with my dad and step-mom to Lake Superior in the Upper Peninsula of Michigan.  My dad has a relative there who lives across the street from the lake.  The boys are beyond excited for a beach/water vacation.  I haven’t been able to go anywhere with them for two years on vacation, so I am looking forward to this time with them. 

As much fun as I had in New York, the boys were never far from my thoughts.  I missed them!  I kept thinking how much they would enjoy the buildings, the firetrucks, the police cars, and all the sights and sounds.  I decided I am going to take them there one day- when they are older- so they can experience New York and all the amazing sights, before they are in their thirties, like me.  🙂  I liked the perspective it gave me, and I want my sons to be able to live and experience other places then where we live. 

As I flew back into Denver, I saw the few tall buildings on Denver’s skyline.  They definitely didn’t look like much after staring at New York’s massive and countless skyscrapers for five days.  They looked tiny by comparison.  But there were mountains, and open spaces.  I could see miles in any direction- something you don’t get to do in New York from the ground.  There wasn’t a cloud in the sky, and they announced it was 75 degrees.  It was a perfect Colorado day, I was going to see Ryan and Cole, and I knew I was home.

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ACS Blogger Advisory Council Cancer

Bloggers for More Birthdays

MoreBirthdays_blogbadge

One of the first things I’ve been asked to do as a member of the American Cancer Society Blogger Advisory Council is to dedicate a blog post to someone I love with cancer.  The first “person” who came into my mind was all of my blog readers who have thyroid cancer and have written to me with their stories. 

I could write about Holly who is 37, and a mom of three, who after having a thyroidectomy in September, and radioactive iodine last month, is facing the possibility her cancer has spread into her lymph nodes.  Holly had been told her lymph nodes were fine, but they discovered an area of high iodine intake.  If this spot turns out to be lymph nodes, Holly could be facing another surgery to remove them. 

Or I could write about Patricia who is also 37, and a mom of two.  During the past year, Patricia had a huge lump in her neck and with the urging of her children’s father, she decided to follow up on it. It turned out to be a 6.5 inch goiter.  She had a biopsy done on October 15th, and found out early this month it is cancer.  Patricia is facing a thyroidectomy surgery within the next two months. 

There is Nicholas, who is a physician with three small children, who had a thyroidectomy and a neck dissection in June.  He is still having drainage and medication issues. 

These are just three people out of the many who write me about their experiences with thyroid cancer.  A common theme in many of their letters, is they are looking for support and someone who understands what they are going through.  Despite their cancer, and challenges, these cancer patients and survivors continue on in with their lives.  They are there for their children and spouses.  They are there for their parents who have medical issues themselves, and for the others that rely on them.  Most importantly, they continue on for themselves. 

I have never met Holly, Patricia, or Nicholas, or many of the other people who have written me.  But I admire and love their spirits of determination and knowledge that they will beat their cancer and will be healthy to be around for countless birthdays.  Just the fact that they are sharing their stories, shows that they have taken control of their cancer, so they can fight it. 

Anyone can join the American Cancer Society in the effort to celebrate More Birthdays.  Just dedicate a blog post to someone you love who has been affected by cancer and celebrate them.  You can check out other posts on the American Cancer Society’s Birthday Blog for inspiration. 

Birthdays are good!  Let’s have as many of them as we can!

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Activities Cancer Health

American Cancer Society Blogger Advisory Council

I am excited to announce that the American Cancer Society formed a new blogger advisory council in September.  Their purpose from the press release

The Council members will work with the Society to determine how best to use social media to galvanize the movement for more birthdays in the virtual world by encouraging women to take an active role in fighting cancer. The Society’s movement for more birthdays seeks to save lives from cancer by helping people stay well, helping people get well, by finding cures and fighting back against the disease. 

I am very pleased to let my readers know I am the newest member of the Council!  I am beyond thrilled for this opportunity!  I am looking forward to working with the other Council members, and providing additional ways to help all cancer patients fight their cancers.

I obviously have a keen desire in raising awareness on some of the issues around thyroid cancer, many which I have written about on my blog.  I feel working with the American Cancer Society on this new council will maximize and build awareness for thyroid cancer.  

To all my blog readers with cancer who have shared your stories, your fears, your struggles, your triumphs, and comments with me, thank you.   Hearing your stories helped me understand I wasn’t the only one experiencing many of the feelings and issues I had when fighting thyroid cancer.  These stories, and my own experience has made me realize how much more support thyroid cancer patients need. 

I am honored to be able to serve on this new council, and I plan to make sure our experiences with thyroid cancer will raise awareness and provide help and support for all cancer patients and their loved ones.